Breaking down the stigma around disability in Northern Uganda
For people living with disabilities, and those caring for them, support, advice and self-help groups can have a community-wide impact. Programme Funding Manager Sarah Williams recounts her recent experience visiting the ADIMAP project in Northern Uganda.
The tarmac roads to the remote village of Olinga in Northern Uganda soon ran out into rough dirt roads, then to small tracks, covered by long grass. The Ripple Effect Extension Workers I was with, Juliette and Louis, know this area well; they visit the community regularly and have built a close rapport with the families. Eventually, we came to a compound of huts and some chairs placed in the shade of a lime tree for our visit.
We met Quinto, a smallholder farmer who is part of the ADIMAP project. He spoke about the difficulty he’d had with his severely disabled son, Idi, and how in the past he thought he had been cursed to have him. Before the project, he struggled to care for Idi, particularly when he and his wife were on the farm. However, Juliette has since provided advice and training.
The power of self-help groups
Idi now has a wheelchair, subsidised by the government, carefully fitted to meet his needs. He can join his family in the compound, at community meetings and on the farm, where he sits in the shade as they work. During our visit Idi’s stepmother takes him off for dinner before carefully carrying him back, covering him in a colourful blanket so he could sleep as we talked.
The project works with 300 members: disabled and non-disabled farmers and their families. Quinto is the proud Chairperson of his ‘Rubanga Mambo Group’, translated as ‘God’s Given Group’. Covering social inclusion, gender, leadership, hygiene and sanitation, farm skills and enterprise development, they support each other and share experiences. Quinto is already seeing the benefits.
On to bigger things
Quinto’s wife has set up a small business selling traditional Ugandan street food near the village hall. They have a scheme to save in the group: “We use a merry go round system - we are all saving to buy iron sheets for a food store. We store some rice in the house and sell it later after rice season so we get a good price.”
The project has started conversations in the community about disability and the inclusion of everyone. It is helping to break down the stigma and negative cultural attitudes towards disabled people and improves lives in terms of hygiene, sanitation, nutrition and income. The final year of the project will see further improvements with adaptations for specific needs which have already started to happen – adaptation of tools, farm layouts, latrines and water points have been the innovations of the groups themselves.
As we left, Quinto handed us a bag of limes to take away – we had been admiring the abundant fruit as we sat under the tree. He heard the team liked to take lime in their tea. Juliette arranged a follow up visit to the group and we headed off to find our way back down the tiny track.